Your ‘best self’?
Have you ever experienced a difficult season in life where you felt you longed to go back to who you were before? Or at least a version of yourself when you were doing well in the past (acknowledging that in all likelihood you would have had past seasons of difficulty too, just as we all face ups and downs as human beings throughout the journey of life).
Looking Back:
As some of you who read my blog may know, after 2 years of being extremely careful and respectful of all rules, etc during the pandemic and lockdowns, I caught Covid-19 in October 2022, and then ended up with ‘long-Covid’ which in many ways is similar to ME / CFS and have been gradually and steadily recovering, with many tough times in between, and although I’ve made significant improvements which I’m so grateful for, I’m not up to the fitness that I was in my pre-long-Covid days – but I have learned a lot through the process which is really what this post is about. That being said, many years ago I also had a ‘system shutdown’ where my body had gone through so much stress that I was in a state of fight/flight and not able to function that well and the body’s natural protective system stepped in and shut me down physically in some ways as I had to process through some tough things emotionally that I had been holding together for a long time in survival mode.
I persevered through those tough times and was travelling, walking long distances, helping other people in various ways, and I was living a thriving version of myself. The last time I travelled was at the end of 2019 just before the pandemic and lockdowns struck. I managed to blog a lot during this time, especially with regards to helping others who might be suffering with mental health, and sharing my faith in Jesus, as well as sharing creative things. I finished writing a novel that I had been working on for several years and a short collection of creative prose and I self-published these on Amazon and got copies printed for friends and family, it was a goal I had been working towards for many years, to be a ‘published’ writer, and one I accomplished during the lockdowns. I kept my flat immaculately, and I worked full time from home and exercised daily and kept productive and built up my faith through study and prayer.
It was not all plain sailing however, and I struggled a lot with loneliness and other stressful issues, stress and anxiety as the months and then years progressed and my brain / amygdala going into overdrive of fearful things from past and imagined threats of the future as many of you may also have experienced. This took a toll on my nervous system. So while ‘getting back to normal’ after lockdowns I did in some ways adapt well and enjoyed the freedoms, but my nervous system and brain / body weren’t in a state of calm and I needed to rest a lot – but society seemed to have just pushed everyone back to as ‘normal’ as possible and so many around me just managed to easily get back into things – perhaps their experiences of lockdown were easier. So perhaps when I got Covid-19, the anxiety I was facing along with past experiences of anxiety and complex PTSD and long term stress may have been contributing factors to why it hit me so hard – who knows – there are many variables and unknowns but research and experience of people who are overcoming or living through conditions such as long-Covid, ME / CFS that a hypersensitised nervous system can be a big contributing factor in keeping people in this state of being chronically unwell. I have had many good days as well as struggles, and I wanted so much to ‘get back to’ my former thriving self, a lovely person who cared for the needs of others, who contributed, who was creative and even by some admired. I often try to ‘flatten out’ the rough bits of life, of thoughts and feelings and difficult experiences, by focusing on the positive and there is a place for that, but there is also a place for accepting the reality of how things are and growing through them.
Long-Covid had a big impact on me initially. I thought I’d recover in a few weeks, but the weeks dragged on and I hit the official 12 week period for ‘long-Covid’ in the UK, and continued to remain unwell for several months, my body being all but completely shut down and in a state of extreme stress, fatigue, fear and exhaustion. I was also isolated during much of this time which didn’t help with the fear of what was going on and the mental stress and neurological impact of what my brain was doing which was very frightening at times. I was barely able to leave my bed for the first few months, I was signed off work for a few months, then went back to working from home. It took me time to learn to sit up again, to walk from room to room, I’d get exhausted making food or doing simple things in my flat to survive and would have to lie down for hours. I missed walking so much, but it was early days and I thought over time I’d recover. I was encouraged to ‘plan, pace and prioritise’ to manage energy reserves and not to shock my already stressed and panicked nervous system that had taken a hit from long-Covid and hadn’t bounced back. Writing all of this it just brings back to me how far I have come – I couldn’t have dreamed of writing blog posts in those days, barely able to survive or concentrate, and I had to retrain my system to handle simple life tasks – showering, sitting up, eating, standing, walking without my heart racing – by walking I mean a few steps at a time, then gradually going outside for 5 or 10 minutes at a time, and so forth. I began working from home, and they tried to phase me back into 2 days working from the office but I’d end up ‘crashing’ with Post Exertion Malaise (PEM) or post exertion symptom exacerbation as some call it. It was a rough time, neurologically and mentally it was very frightening. I hope that if someone is going through something like this they can hold on to hope for progress. I am not ‘back to normal yet’, but since those early days I have gone back to working full time from home, I am able to go out occasionally for walks and have a nice place to sit not far from where I live and overlook some water (although not a beach as I’m in the city, it is still lovely on a nice day), I’ve managed to see friends from time to time. I still experience ‘set backs’, crashes or adjustment periods, but I have learned so much and I have hope for further recovery. I am able to sit up and blog, I play my violin from time to time and have done some ‘adult colouring in’ for a few minutes here and there and am now blogging. This is all from not being able to do any of this before without system melting down, going into stress, fight/flight and anxiety, and becoming stressed, tearful and overwhelmed, but slow and steady I have made progress and am moving gratefully forwards despite the up and down days (one of the scariest parts is that the amygdala is so overactive and sensitised that you can sit in a completely safe place while your own brain scares you and things feel so unreal and detached from the safe present reality you’re in with images and fearful ‘brain stuff’ as part of the recovery process / condition). I know of people who have not been able to leave their homes for 4 years so I am very grateful and go through my days thanking God for all the ‘little’ things that it’s so easy to take for granted. The journey hasn’t been easy and it isn’t plain sailing yet, but that’s what I want to come to about growth.
There’s no going back….
It’s easy to want to wear those rose-tinted glasses. But life isn’t all plain sailing and we need to learn to ride those waves, even when it feels our own brains are working against us, when in reality they are just on high alert for any and every threat and trying to do their job of keeping us safe by presenting all sorts of possible fears to us. Chronic conditions where fatigue is a big part of the story and physically we shut down are and can be really tough, but as I have learned are also an opportunity for growth. In my difficult days, after having moved forwards considerably but still not ‘back to normal’ (and I’m still working towards full health recovery, but I have hope I’ll get there and be stronger as I have heard so many recovery stories) and experiencing ‘crashes’ after trying to do something ‘normal’ or what would have been easy for me before this happened such as a short walk, in those days I would long for going back to the healthy, thriving, happy, lovely version of myself that I’d had at various times in different seasons even though I had been through many tough times in between too. I would think to my immaculate flat that I was no longer able to keep up with, finding it hard to do the simple things, and think back to that adventurous, carefree me reaching out to others, spending time with friends, even though I had anxiety, etc. I missed that version of myself and my life. I missed it also because there were some people telling me that you just have to learn to live with and manage this condition, and this is largely what I have been doing, but I am making progress – but it was so disheartening to hear that. In such a state, you’d want to ‘go back’ to a happier, healthier self. I’ve had to learn some ‘Acceptance and Commitment Therapy’ in managing stress responses, accepting present reality, and sitting with difficult emotions, brain experiences, thoughts and feelings, all of which is part of being human. But we can’t go back. Not everyone’s journey is the same, in fact, no one’s journey is the same, everyone has choppy waters from time to time, and for some with long-Covid / ME / CFS they have been suffering for many years, and some for decades.
So, if we can’t go back, then we must go forwards….
This journey, even though tumultuous at some times, and even though I am still working towards full recovery, has taught me so much. It has opened my eyes to the suffering of many other people and I can relate to this having been living through it, even though when people see me I look as well and vibrant as ever on the good days, there is much behind the scenes that others are still going through. It has made me grateful for every day blessings, and made me more prayerful. I have learned the human body and mind are incredibly resilient, and the brain is deeply complex and we need to learn to over-ride unhelpful programmes that run automatically and that put us into fight/flight. I have listened to many recovery stories and seen how people have turned their own difficulties around to help so many others, people like Raelan Agle or Jan Rothney or so many others getting the word out there about recovery and how we can work on our mind/body to become more resilient and calm.
So I am able in this point in time to ‘accept’ that I can’t go back to my former self. But through this journey, blessings have been added to me, I have new friends, I have the care of old friends who have been on the other end of a phone to talk to me in difficult times, and I am learning that I can build up resilience and core strength. I have been able to pray for so many other people who I haven’t even met who are going through similar things. I have found incredible inspiration online from people who have gone through adversity and are living incredible lives now, and even in our times of being unwell we are still being incredibly resilient. The anxiety and stress part and difficult thoughts and neurological symptoms are one of the hardest parts to deal with as well as the fatigue, but through acceptance and commitment therapy over a few phone sessions I have been learning to sit with these and accept this human experience rather than just wanting to fast forward or skip back to the good times. I am able to accept because I have hope that I will not only improve that one day I will thrive again. Even writing this blog post, sitting up, enjoying the moment, reaching out to other people, even this is ‘thriving’ right here and now.
Hope
Hope is such a powerful and necessary thing. I can accept that I can’t go back because I believe that who I will become going forwards will be even stronger than who I have been before. Yes, there are difficult things and challenges, but I have been learning about finding core strength, not physically, but emotionally and mentally, and learning how to work with my own brain and to find a calmer way of being and calming down my system, so I don’t want to go back to a state of stress. I am learning about holding on to key truths through this time. As mentioned before, my faith in Jesus Christ is my anchor – well, not my faith itself, but He Is my anchor, He holds me through it all, and reading and re-reading psalm 23, I am able to take in Truths that will overtime continue to shape my thinking to correctly align me to the Truth and help me be solid and live the rest of my life looking up with faith. I have listened to so many stories of people who have recovered and their lives have got better, they have realised that they can gradually and gently retrain their systems and get stronger, and that is my hope for me too and to reach out to others. I have hope that I will continue to learn and grow and walk by faith and even though I don’t know what this will look like, I will have something lasting to give, I will be able to bring my offerings before my Creator and watch Him transform weakness into strength for His glory and eternal purposes. I will be better able to withstand what is to come and walk in truth and be a better version of myself, stronger, less anxious, knowing that I had to go through so much to learn all these things. I don’t know what the road ahead will look like, but I will take each small step, respecting my body and mind, knowing that the difficult moments will pass, and being more focused on Christ and able to reach out to help others. Even this blog post, if it helps someone, then something good will have come from this.
I have seen stories of people who are doing amazing things physically as well as from a deeper place of their own human experience after going through these challenges, so while I can’t get back to some former thriving experience of myself, I will move forwards into something deeper, richer, stronger, better, learning each day about how to build up that core resilience – I may not be ‘there’ yet, but I’m certainly learning so much and have a deeper faith in Jesus and His eternal purposes, and a deeper understanding of the needs of the human system for calm and that we are also resilient and can grow and change as we are transformed by the renewing of our minds, and through rest and gentle recovery.
I hope that this may give someone out there hope. ❤
I will be better than before…..as I journey on, I don’t know how, but that is the treasure from difficult experiences. Growth.